mbilokonsky

5 ms·

1.
by mbilokonsky 5y ago
I was going to engage with this but honestly I'm so tired of you misrepresenting me and projecting your bizarre mishmash of gatekeeping and victimhood onto me that I am going to bow out of further interaction with you. I will say that
2.
by mbilokonsky 5y ago
If someone is stepping on my face it doesn't much matter to me if they're doing it on purpose or if they just don't realize I'm there -- the goal is to make them stop stepping on my face. What you're describing is a
3.
by mbilokonsky 5y ago
So, I think we've found some common ground here. I'm going to say two things, offer a simple apology and then make you an offer. 1. You assume that I don't know what it's like not to be able to communicate or make myself
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by mbilokonsky 5y ago
Ok, thanks, I'll reflect on this.
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by mbilokonsky 5y ago
For what it's worth, I meant "thank you for pointing out the arguments that I would have otherwise had to do the work of pointing out." The phrase "call out" isn't a universal dog whistle for bogey men to come
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by mbilokonsky 5y ago
Autistic people die before age 60, are subjected to electrical shocks in the US that are illegal to use on dogs, and have their entire subjective experience erased in the name of conversion therapies that cause CPTSD but are fully covered b
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by mbilokonsky 5y ago
Thanks for the measured response, I hear where you're coming from. > Can you clarify what you mean? I can try. When I say that non-Autistic people shouldn't speak over Autistic people I am referring to decades of behavior. Ever
8.
by mbilokonsky 5y ago
I agree with that sentiment 100%, which is why I went to great lengths to encourage readers to make sure they check in with other Autistic people, that my voice is only one voice, that we are not a monolith, that I don't speak for ever
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by mbilokonsky 5y ago
I'll assume you're asking in good faith, so let me answer why I put my pronouns. I'm mostly cis, mostly straight. I round up to a typical "straight white guy". I don't have to deal with the things trans people
10.
by mbilokonsky 5y ago
With respect: 1. I'm not talking over anyone. I'm expressing that I found the use of the phrase 'severe autism' in a response to an article explaining why 'there is no severe autism' to be a problematic use of
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by mbilokonsky 5y ago
Great! That's a valid perspective and you should keep it! In the autistic twitter community where I and a lot of other advocates spend our time we are inclusive and speak frequently about ourselves as a culture -- not as a monolith, mi
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by mbilokonsky 5y ago
1. Your distaste is of course your prerogative! But I'd encourage you to read the piece and recognize that I go to great lengths to encourage people to seek out views beyond mine -- I even say that plenty of Autistic people disagree wi
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by mbilokonsky 5y ago
> My guess is that the gulf between the author and people with autism who are less functional is greater than between a "neurotypical" and the author. Your guess is wrong. Research shows that people like me still die before 60
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by mbilokonsky 5y ago
Seems that way, huh?
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by mbilokonsky 5y ago
Thanks for this feedback, I'm hearing that that part of the essay was confusing. I'll try to revisit it and simplify it. The TLDR is that there is an assumption dating back to the beginnings of Autism research that Autistic people
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by mbilokonsky 5y ago
As an Autistic person who recognizes that many friends and interlocutors are also Autistic I can tell you that I have yet to discover a way to so much as suggest people look into it without terrifying and offending them. A large part of the
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by mbilokonsky 5y ago
Thank you so much, I agree with you. That's why I started with disability as the first subject -- because "Nothing About Us Without Us" isn't just about Autism, it comes from the disabled community in general. It's
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by mbilokonsky 5y ago
1. I'm not an Aspie. I'm Autistic. The language choice matters. 2. I'm not talking on anyone's behalf and spend half the words in the text validating people who disagree with any of my claims. 3. Oh, I see, Autistic peop
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by mbilokonsky 5y ago
This feels really weird to me. My whole point in the piece was that non-Autistic people shouldn't be given unilateral leave to talk over and in place of Autistic people, but that's exactly what you're doing. I had a whole sec
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by mbilokonsky 5y ago
Hi, I'm the author, I'd love to help clarify this. When I say I'm speaking for "the community" I mean very specifically that I'm a member of the community and I'm speaking about us. I went to great lengths
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by mbilokonsky 5y ago
Hi! I'm the author of this piece, and I really appreciate the feedback I'm seeing from some folks. Thank you for helping me make this the best essay it can be, this is obviously important to me. I see and understand that there are