khomenko

11 ms·

1.
by khomenko 10y ago
that. there are no real parallels here.
2.
by khomenko 13y ago
"Customers who purchased kits before November 22, 2013 will continue to have access to all the reports they’ve always had."
3.
by khomenko 13y ago
Everyone who has ordered since November 22nd is offered a refund. The details are on the website and will come in the email. Have some faith, dude. Of course they have to do that.
4.
by khomenko 13y ago
a) they never marketed themselves as predictors of cancer or told anyone they have major disease b) the criteria for scientific evidence are here https://23andme.https.internapcdn.net/res/pdf/HIC-SXIYiYqXre... (fr
5.
by khomenko 13y ago
Yes, in PDF form: https://www.23andme.com/user/report/health/
6.
by khomenko 13y ago
Yeah, you should be OK.
7.
by khomenko 13y ago
If you think that's dumb, here are a couple of petitions you can sign: http://www.change.org/petitions/fda-administrator-margaret-h... https://petitions.whitehouse.gov/petition/overrule-fdas-d
8.
by khomenko 13y ago
Yes, for the mendelian ones that can be inferred in a relatively straightforward way from the raw data. Not really, for the more complicated risk assessments.
9.
by khomenko 13y ago
You can run the raw data through a 3rd party tool like Promethease ( http://snpedia.com/index.php/Promethease ) while you wait for the FDA kerfuffle to work itself out. YMMV though.
10.
by khomenko 14y ago
It's a chicken and egg problem. The more people like you purchase the service, the less European it will become. It has made huge strides in the last couple of years, but there is a way to go still.
11.
by khomenko 14y ago
It's a mistake to infer that this means "regular" 23andMe results are similarly affected. The exome project was clearly labeled as a research one and the data was returned with no guarantees whatsoever. The "regular" 23andMe SNPs go through
12.
by khomenko 14y ago
Indeed. Singe Payer + Universal Coverage = FTW.
13.
by khomenko 14y ago
You can. Insurance spreads risk across population pools. You have to carve out those pools somehow, so you use broad variables like age and gender. The problem is genetic information has potential to make the pools too small.
14.
by khomenko 14y ago
Knowing a little bit about the culture of the company, I hope that they will be transparent about any laws they have to comply with, a la Google Transparency report: http://www.google.com/transparencyreport/removals/government... To my kn
15.
by khomenko 14y ago
They ran an exome sequencing pilot recently, so sequencing is certainly coming.
16.
by khomenko 14y ago
Broadly speaking, because there are laws on the books that prohibit using genetic information for health insurance discrimination.
17.
by khomenko 14y ago
Also, California has put a more stringent law on the books in 2011: http://www.privacylives.com/california-passes-bill-to-prohib...
18.
by khomenko 14y ago
And customs duties. They are not trying to gouge you, AFAIK.
19.
by khomenko 14y ago
It's OK. Nobody gets your genome. It would be suicidal for them to share, plus there are laws on the books (GINA at the federal level, a stronger law recently passed in CA). Also, quite a few people have been posting their data openly, for
20.
by khomenko 14y ago
That would be some glitch :) But no, it's the latter.
21.
by khomenko 15y ago
Next time you think you discovered a gigantic easily exploitable security hole in a mature service that has been around for 10+ years, please think again and research it a lot more before you make a fuss about it. It's possible, of course
22.
by khomenko 15y ago
You can "buy it as a gift" and pre-pay the 1-year subscription.
23.
by khomenko 15y ago
That's certainly true right now, but the information in the health reports gets updated all the time based on new studies, so it will continue to get better.
24.
by khomenko 15y ago
It is something I know for a fact since I worked at 23andMe for 4+ years. Looks like the first responder already found the relevant section and posted it. It's not an ironclad assurance, and there are a few caveats, but these provisions, to
25.
by khomenko 15y ago
If 23andMe is acquired by any company (insurance or otherwise) that wants to change the Terms Of Service and / or Privacy Policy, they will have to notify customers, and those customers who don't agree with the changes would have the right