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analogj
searching Neon…
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How to Ignore Information Blocking Legislation Like a Pro
(blog.fastenhealth.com)
2 points
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analogj
2y ago
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1 comments
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analogj
2y ago
I just posted a tongue-in-cheek blog post about HIPAA/Cures Act Information Blocking techniques found in the wild. These are real barriers faced by patient-access API developers like Fasten Health, effectively blocking patients' a
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analogj
2y ago
That's exactly what we're doing with our Fasten Health PHR[0] & with our Fasten Connect[1] product. The biggest issue is that there are 250,000 registered health systems in the US. That's a massive long-tail to support an
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analogj
2y ago
As the Metriport team mentions HIEs/TEFCA don't realistically allow patients to request their own medical records at the moment. But there are definitely examples of PHRs that leverages the Cures Act Final Rule mandates around ind
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analogj
2y ago
As the Metriport team mentions HIEs/TEFCA don't realistically allow patients to request their own medical records at the moment. However it is possible to request your individual medical records using the Cures Act Final Rule mand
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Code to Care: Designing Viral Privacy Policies in Healthcare
(blog.fastenhealth.com)
4 points
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analogj
3y ago
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2 comments
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analogj
3y ago
Hey HN, I've been thinking alot about the properties of viral open-source licenses and how this could be applied to other legal documents - like privacy policies. As it becomes possible to share our medical records with caregivers and
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analogj
3y ago
So this is partially the reason why I built my own open-source Personal Health Record (PHR) Fasten Health [1][2] In my experience patient portals vary from incredibly functional to almost worthless, which was a huge problem for me given tha
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analogj
3y ago
There's actually a "Patient-contributed data" initiative being run by the standards body (HL7) that's gaining traction. In an ideal world it would allow patients to "push" their electronic records to a new prac
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analogj
3y ago
Disclaimer: I built an Open-Source PHR The thing that most people don't realize is that the legally enforced HIPAA protections they take for granted no longer apply when they request their medical data from a healthcare institution and
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analogj
3y ago
This is not quite the case any longer The 21st Century Cures Act was signed 8 years ago (but compliance was only required as of 2023). It states that Healthcare Institutions (& EHR developers) must provide a mechanism for patients to ac
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analogj
3y ago
Interestingly your [1] citation may no longer be the case. The 21st Century Cures Act was signed 8 years ago (but compliance was only required as of 2023). It states that Healthcare Institutions (& EHR developers) must provide a mechani
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Show HN: Fasten Health – open-source Personal Health Record – 27,000 providers
(fastenhealth.com)
4 points
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analogj
3y ago
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1 comments
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analogj
3y ago
I'm actually working on an open-source Personal Health Record (PHR) app called Fasten Health - https://github.com/fastenhealth/fasten-onprem It allows patients to pull their complete medical history from their var
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analogj
3y ago
I've been working on my own Open-Source Personal Health Record (PHR) that leverages FHIR & Smart-on-FHIR https://github.com/fastenhealth/fasten-onprem Hopefully with the Cures Act Final Rule, interoperability
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analogj
3y ago
Sorry to hear about your wife's health issues, I hope she's on the mend. I had a similar experience when dealing with my chronic condition. Had to interact with almost a dozen different health portals, a couple of which were ok,
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analogj
3y ago
ah, it's not super interesting. Most EMR systems provide an open list of FHIR endpoints for their customers. `fasten-source-gen` is basically an ETL repository which imports the endpoint metadata provided by these EMR systems and enric
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analogj
3y ago
Hey! It is definitely US-centric, however FHIR (the protocol that Fasten speaks natively) is an international standard. We're tracking international support in this github issue - https://github.com/fastenhealth/fa
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analogj
3y ago
Fasten Health [1] is an open-source, self-hosted, personal/family electronic medical record aggregator, designed to integrate with 100,000's of insurances/hospitals/clinics. It's designed to automatically pull your
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analogj
4y ago
Hey! My name is Jason, I'm the developer of Fasten Health - which seems to be a similar open-source project. https://github.com/fastenhealth/fasten-onprem If you're interested, I'd love to chat.
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analogj
4y ago
Hey, So I recently had a similar problem -- had a semi-serious medical issue, had to go to a number of different medical institutions, all of which asked me for a comprehensive medical history. I was able to give them high-level answers, bu
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analogj
4y ago
Yep, Scrutiny has always been designed for a hub&spoke deployment model: https://github.com/AnalogJ/scrutiny/blob/master/docker/examp...
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analogj
4y ago
Interesting, I don't recall anyone else bringing this up as a potential name collision previously. Doing a cursory search of Broadcom + scrutiny doesnt yield many results - other than antitrust litigation https://www.google.
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analogj
4y ago
Thanks!
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analogj
4y ago
as LambdaComplex mentioned, yes Scrutiny can differentiate between NVME, ATA and SCSI drives & SMART metadata/attributes
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analogj
4y ago
It should You can fun the web & collector in hub & spoke mode, where the webapp runs within a VM/container, and the collector runs on the host. Someone posted about some issues they're running into wiht ESXI & smartc
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analogj
4y ago
great to hear! If you run into any issues, or have any feedback, please create a github issue, I'd be happy to help out
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analogj
4y ago
Hey everyone, author of Scrutiny here! Thanks @smcleod for posting about it, I was surprised by the spike in traffic and stars this morning :) Happy to answer any questions about Scrutiny you all may have
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analogj
4y ago
I’ve been using Airalo for a couple years now to get cheap data during international travel. I’m sure there are cheaper local/physical store options, but the ease of getting access to local cellular network with a couple of clicks cann
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analogj
4y ago
Yeah, data brokers are awful and their business model is an abuse of the ideals of the internet imo. I’ve been working on a tool to automate GDPR & CCPA deletion requests to data brokers - basically it’s a database of ~650 registered d
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