I believe with so called "Orphan diseases" the economics of research and eventual market release rarely work out for private companies. I believe it takes a res

I believe with so called "Orphan diseases" the economics of research and eventual market release rarely work out for private companies. I believe it takes a research phase funded by charities, grants, and tax breaks for companies to have any interest. As a family affected by this, whatever gets this to market. However, I am sure someone will make money.