5 ms·
> The good news is that this is happening faster than you would think. The research might be moving fast, but access to these new treatments still moves at a g
by clusterfoo 12y ago
> The good news is that this is happening faster than you would think.
The research might be moving fast, but access to these new treatments still moves at a glacial pace. At least for the people who need them... patients have to wait years until drug trials run their full course, even when preliminary results consistently show these treatments are effective.
One can understand why these rules and regulations are in place, but surely there's a better way of assessing the risk/benefit of prematurely approving certain treatments for diseases that will almost certainly kill (or gravely, permanently debilitate) those who suffer from them long before the drug is approved.
Speaking from personal experience dealing with this right now, it's extremely frustrating that these treatments are just out of reach because access to them is surrounded by so much red tape -- If you don't have $120k sitting in your wallet, that is.