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A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/ http://care-data.info/ It includes details of how to opt-out.
by ghswa 13y ago
A good explanation of the scheme, from Dr Neil Bhatia can be found at http://care-data.info/ http://care-data.info/
It includes details of how to opt-out.
- switch007 13y agoIt's a long site so I'd just like to highlight the following: "The data extracted - your Primary Care Dataset - will include the following: Your NHS number Your date of birth Your postcode Your gender and ethnicity Your medical diagnoses (including cancer and mental health) and any complications Your referrals to specialists Your prescriptions Your family history Your vaccinations and screening tests Your blood test results Your body mass index (height/weight) Your smoking/alcohol habits" --- Go to that site. Opt out here http://optout.care-data.info/ http://optout.care-data.info/. It's really simple.
- aaren 13y agoIf you prefer, you can just write a letter to your surgery: - State that you wish to opt-out of care.data - Request that both the 9Nu0 and 9Nu4 codes are added to your GP records - Remember to include full names and DOBs (and your address if you are happy to)
- porker 13y agoThe conundrum I have is knowing this has been done. I wrote a letter with all of this, took it to the GP surgery. The receptionist was bemused. There has been no acknowledgement. Can I tell if I've been opted out, without hassling the already-overworked reception staff?
- ghswa 13y agoTry talking to your practice manager - mine is very helpful and (s)he'll hopefully be much more clued up about this than the reception staff.
- smikhanov 13y agoNot only that, how do you know those codes are meaningful?
- DanBC 13y agoWrite a letter and address it to the practice manager or the caldicott guardian. Ask for a response within 28 days to tell you what is happening.
- gcb0 13y agowow. having that being already identified to the individual is pretty dumb. what is the excuse for this to even be like so in the first place?
- thinkpad20 13y agoCrazy that one has to opt OUT of that, seeing as I'd bet only a minuscule fraction of the population would ever opt in...
- donskif 13y agoIt is fairly simple to print off a form and send it in to your GP but I suspect the vast majority of people will see this as a hassle and never bother. Considering recent government actions, I find it unsurprising that this is the only method - as far as I can find - to opt-out. A simple form or email address would have been great. But we couldn't possibly have that for an online data service, oh no.
- lostlogin 13y agoLove how it is opt out. If it was opt in would they have any takers? If you set up auto-opt in systems where I live you would soon have the commerce commission, privacy commission or the police knocking on your door asking hard questions.
- dewiz 13y agothank you!!
- brownesauce 13y agoI found this blog post from the NHS chief data officer useful to understand how they view patient data http://www.england.nhs.uk/2014/01/15/geraint-lewis/ http://www.england.nhs.uk/2014/01/15/geraint-lewis/