5 ms·

As someone who suffered for 7 years being treated for dermatitis when I had chronic undiagnosed IgE (https://en.wikipedia.org/wiki/Immunoglobulin_E https://en.w

As someone who suffered for 7 years being treated for dermatitis when I had chronic undiagnosed IgE (https://en.wikipedia.org/wiki/Immunoglobulin_E https://en.wikipedia.org/wiki/Immunoglobulin_E) issues, this looks perfect. The effects of my intolerances as they are referred to is that whenever I ingest anything containing (almost 160+ other things) eggs, dairy, cereals, fructose, vinegars, anything with Soy/Tofu, apple skin, tomato skin, yeast, and over ripe bananas I have serious mood changes, not to mention GI issues, and suffer with dermatitis on my face and arms. It is also characterised by bloody boils deep in the skin in fatty (I'm 70Kg, 183cm and 13% body fat, so that's relative) areas of my body. This went undiagnosed for so long, that I never counted on a cure, and, in fact there isn't a cure, my body has become allergic to those foods for some reason, and eventually it may be that my immune response subsides, and I can once again enjoy them. (Note about how thrilled I was to hear about Soylent, and then how dismayed that they decided to hone in on the cheapest possible recipe, at the expense of the "Pea" protein variant which might have been suitable for me) I think the meals/feels app could make a difference to any hackers who take the time to use it. For anyone else, who thinks they may have allergies/intolerances similar to mine, beware that topical allergy testing won't catch it, but a focused blood panel for IgE response might. As far as typical reaction times go, GI disorder can set in anything from instantly, to 24 hours later, and the effects on my mood, and skin, etc have lead time of anything from 24-100 hours, and a recovery time of as much as three weeks.

bollockitis 13y ago
Out of curiosity, what can you eat?
jack-r-abbit 13y ago
My youngest has a fairly strong intolerance to soy. And we've just gotten to a stage where he can eat eggs that are cooked into stuff (muffins, pancakes, etc) but not just by themselves (fried, scrambled, etc). We haven't even tried nuts with him yet. When people think of food allergies they think nuts because that is the more common one and more likely to cause anaphylaxis. Less attention is given to intolerances (maybe because they are not typically fatal). That is starting to change though. When I tell people he's intolerant to soy they don't really grasp what that means. It is probably 100 times easier to avoid nuts than it is to avoid soy. Soy is in practically everything. Particularly the things kids like to eat. My kid is too young to really benefit from this app since he can't really tell me his mood. All I could do is notice if he starts throwing up or has nasty diapers. But I can totally see this helping people who need to track their reactions to foods.
- loceng 13y ago
  Should you be trying to see how much pressure his body can take re: eggs? I know there's a difference between raw egg and cooked egg, though I'm sure there's still irritation going on - just not all at once - if the egg is distributed with other food in the body. Just wondering if this is what's generally advised.
  - jack-r-abbit 13y ago
    I think what you are asking about is referred to as a food challenge: Dose. Wait. repeat. His Allergist sets the plan. We started with really baked eggs (muffins, cakes, etc). At first it was in the Dr office with controlled dosage and interval. He passed so we went home and continued to feed him muffins and such. When that went fine for a few weeks we started with lesser cooked eggs (pancakes & waffles). We will not be trying just cooked eggs (fried, etc) for a bit. And that will be back at the Allergist's office. Prior to eggs, we did the same challenge with soy in the Dr office. Tiny sip. Wait 15 minutes. Slightly larger sip. Wait 15 minutes. 1/4 oz. Wait. Half oz. Wait. Dose. Wait. Dose. Wait. After the final dose we had to wait another 90 minutes before we could leave. At about 85 minutes he just started vomiting. All. Over. It was horrific. I'm glad we were in an examine room and not at home. The nurses handled everything perfectly.
hacker789 13y ago
> As far as typical reaction times go, GI disorder can set in anything from instantly, to 24 hours later, and the effects on my mood, and skin, etc have lead time of anything from 24-100 hours, and a recovery time of as much as three weeks. That's wild. How on Earth did you zero in on your issue? Was it a case of "literally nothing else would explain things, so I may as well get this blood test"? And what do you eat on a typical day?
- aaronbrethorst 13y ago
  I can tell within minutes when I've eaten something that contains gluten. The more unpleasant effects happen later, but I feel different almost immediately. In my case, a friend just offhandedly suggested to me one day that I should try cutting gluten from my diet and I was 'cured' within 48 hours of taking her advice.
- codebeaker 13y ago
  Meat, rice, fish and salad (without dressing… vinegar and dairy based are pretty much all you find anywhere; I eat a lot of olive oils and citrus juice) Nothing indian (all creamy, milky), very few asian recipes (i.e no sushi, I'm intolerant of the green stuff they roll it in), anything with coconut milk is a decent start. Most "egg replacement" for baking contains stuff that I just can't eat, so anything baked is out of the question. I was fortunate when I moved to Germany, my company's recommended doctor was the only one I could find who spoke english, and he was a sports physiotherapy specialist with a side training in homeopathy; for all that I believe it's quack science, the holistic approach to "maybe you have bad skin because there's something wrong somewhere else" was a valuable insight. My health insurance paid the first €200 in blood testing (€50 basic panel, 150 wide panel), having established that there's no "cure", they won't insure the condition any further, but that's OK.
EarthLaunch 13y ago
I have a similar issue, though I suffered no diagnosis instead of a misdiagnosis. One doctor did try to prescribe me steroid cream. I know what you mean about the boils deep in the skin, I get a minor case of those. Thanks for the information. I don't see any new leads for me here, but if you have any, please share. I'm on a strict diet of beef, fish, and that's it. (Other non-shellfish meats are OK too.) There are very few things I can eat. Sometimes I cheat with things I'm slightly allergic or intolerant to. I have to be very strictly gluten-free. I'm undergoing ongoing testing with professional help to try to find causes.
- jevyjevjevs 13y ago
  Would it be helpful if, given a list of symptoms you input: - Based on the most likely solutions others with similar symptoms had, give you a list of the most likely things to try? - A health professional with good allergy expertise respond to your questions? Would that give you the support you need do you think?
  - codebeaker 13y ago
    I might also add that I didn't realise that always being in a negative mood, having no drive to proceed with life, having no ambition, not sleeping well, etc seem like the characteristic "early 20s" mood that most people "go through"… I didn't recognise until after I became healthy what healthy really feels like. Now I run 15-20 miles per week, I'm 30Kg lighter than when I had allergies, and since my diagnosis I've had the drive to found my own agency business and (almost) get a SAAS platform out of the door.
    - EarthLaunch 13y ago
      Same here. Lethargy and motivation were largely a matter of health. Congrats on your success in finding the problem!
  - EarthLaunch 13y ago
    That might be helpful, yes. Even just presenting me with relevant terms to research (such as "IgE") based on symptoms might be very helpful, especially to someone just starting out.

bollockitis 13y ago

Out of curiosity, what can you eat?

jack-r-abbit 13y ago

My youngest has a fairly strong intolerance to soy. And we've just gotten to a stage where he can eat eggs that are cooked into stuff (muffins, pancakes, etc) but not just by themselves (fried, scrambled, etc). We haven't even tried nuts with him yet. When people think of food allergies they think nuts because that is the more common one and more likely to cause anaphylaxis. Less attention is given to intolerances (maybe because they are not typically fatal). That is starting to change though. When I tell people he's intolerant to soy they don't really grasp what that means. It is probably 100 times easier to avoid nuts than it is to avoid soy. Soy is in practically everything. Particularly the things kids like to eat. My kid is too young to really benefit from this app since he can't really tell me his mood. All I could do is notice if he starts throwing up or has nasty diapers. But I can totally see this helping people who need to track their reactions to foods.

loceng 13y ago
Should you be trying to see how much pressure his body can take re: eggs? I know there's a difference between raw egg and cooked egg, though I'm sure there's still irritation going on - just not all at once - if the egg is distributed with other food in the body. Just wondering if this is what's generally advised.
- jack-r-abbit 13y ago
  I think what you are asking about is referred to as a food challenge: Dose. Wait. repeat. His Allergist sets the plan. We started with really baked eggs (muffins, cakes, etc). At first it was in the Dr office with controlled dosage and interval. He passed so we went home and continued to feed him muffins and such. When that went fine for a few weeks we started with lesser cooked eggs (pancakes & waffles). We will not be trying just cooked eggs (fried, etc) for a bit. And that will be back at the Allergist's office. Prior to eggs, we did the same challenge with soy in the Dr office. Tiny sip. Wait 15 minutes. Slightly larger sip. Wait 15 minutes. 1/4 oz. Wait. Half oz. Wait. Dose. Wait. Dose. Wait. After the final dose we had to wait another 90 minutes before we could leave. At about 85 minutes he just started vomiting. All. Over. It was horrific. I'm glad we were in an examine room and not at home. The nurses handled everything perfectly.

hacker789 13y ago

> As far as typical reaction times go, GI disorder can set in anything from instantly, to 24 hours later, and the effects on my mood, and skin, etc have lead time of anything from 24-100 hours, and a recovery time of as much as three weeks. That's wild. How on Earth did you zero in on your issue? Was it a case of "literally nothing else would explain things, so I may as well get this blood test"? And what do you eat on a typical day?

aaronbrethorst 13y ago
I can tell within minutes when I've eaten something that contains gluten. The more unpleasant effects happen later, but I feel different almost immediately. In my case, a friend just offhandedly suggested to me one day that I should try cutting gluten from my diet and I was 'cured' within 48 hours of taking her advice.
codebeaker 13y ago
Meat, rice, fish and salad (without dressing… vinegar and dairy based are pretty much all you find anywhere; I eat a lot of olive oils and citrus juice) Nothing indian (all creamy, milky), very few asian recipes (i.e no sushi, I'm intolerant of the green stuff they roll it in), anything with coconut milk is a decent start. Most "egg replacement" for baking contains stuff that I just can't eat, so anything baked is out of the question. I was fortunate when I moved to Germany, my company's recommended doctor was the only one I could find who spoke english, and he was a sports physiotherapy specialist with a side training in homeopathy; for all that I believe it's quack science, the holistic approach to "maybe you have bad skin because there's something wrong somewhere else" was a valuable insight. My health insurance paid the first €200 in blood testing (€50 basic panel, 150 wide panel), having established that there's no "cure", they won't insure the condition any further, but that's OK.

EarthLaunch 13y ago

I have a similar issue, though I suffered no diagnosis instead of a misdiagnosis. One doctor did try to prescribe me steroid cream. I know what you mean about the boils deep in the skin, I get a minor case of those. Thanks for the information. I don't see any new leads for me here, but if you have any, please share. I'm on a strict diet of beef, fish, and that's it. (Other non-shellfish meats are OK too.) There are very few things I can eat. Sometimes I cheat with things I'm slightly allergic or intolerant to. I have to be very strictly gluten-free. I'm undergoing ongoing testing with professional help to try to find causes.

jevyjevjevs 13y ago
Would it be helpful if, given a list of symptoms you input: - Based on the most likely solutions others with similar symptoms had, give you a list of the most likely things to try? - A health professional with good allergy expertise respond to your questions? Would that give you the support you need do you think?
- codebeaker 13y ago
  I might also add that I didn't realise that always being in a negative mood, having no drive to proceed with life, having no ambition, not sleeping well, etc seem like the characteristic "early 20s" mood that most people "go through"… I didn't recognise until after I became healthy what healthy really feels like. Now I run 15-20 miles per week, I'm 30Kg lighter than when I had allergies, and since my diagnosis I've had the drive to found my own agency business and (almost) get a SAAS platform out of the door.
  - EarthLaunch 13y ago
    Same here. Lethargy and motivation were largely a matter of health. Congrats on your success in finding the problem!
- EarthLaunch 13y ago
  That might be helpful, yes. Even just presenting me with relevant terms to research (such as "IgE") based on symptoms might be very helpful, especially to someone just starting out.