8 ms·
The full diversity of life sounds wonderful, as long as you're not the one suffering painful, disfiguring or crippling conditions.
by c048 5mo ago
The full diversity of life sounds wonderful, as long as you're not the one suffering painful, disfiguring or crippling conditions.
- voidUpdate 5mo agoI am the one suffering from multiple of those conditions
- anhner 5mo agoI'm sorry to hear that. So would you like others to suffer from them as well if given the choice?
- voidUpdate 5mo agoIf they had the choice to not suffer, and they wanted to take it, then I think it's their decision to make, and not anyone else's
- Cthulhu_ 5mo agoBut the moral conundrum here is that they can't choose untill well after they're born, meaning the parents are the ones that need to make the decision.
- ceejayoz 5mo agoThis is one of those situations where the child will likely never get the choice, for the same reasons we don’t require informed consent for being born or getting your diaper changed. By the time they can make it, it’s too late.
- bit-anarchist 5mo agoI would to add onto what others have said by mentioning that omission is still a decision. Even if the parents didn't explicitly choose, the inaction comes with dire consequences towards the child, whose parents are responsible (and held accountable) for taking care of.
- MSFT_Edging 5mo agoNot to downplay, but is it wrong to assume you're self sufficient in daily life? Work a job and pay your bills? You list your site and have a seemingly lots of professional experience. Some of these conditions do make life harder, but there's a big difference between high functioning Autism and disabilities that make someone 100% dependent on others.
- flextheruler 5mo agoIt's so odd to me that we haven't come up with a term for high functioning autism to separate from low functioning. It's ridiculous to me that a commenter with this background can superficially claim to be suffering from the same disability as a family member I have who has required a caretaker to not die and would probably be totally uninterested or unable to even give an opinion on a complex subject like this. I cannot recall why Asperger's as a term was dropped or deemed controversial, but this is the equivalent of stolen valor but for mental illness especially when used to justify an argument. How is it any different than people with obsessive compulsive tendencies claiming they have OCD? There's a huge difference.
- fisherjeff 5mo agoDr. Asperger may or may not have been sorting autistic children into high- and low-functioning groups so that the higher group (with “Asperger’s”) could go on to become good Nazis and the lower group could be euthanized. https://en.wikipedia.org/wiki/Hans_Asperger https://en.wikipedia.org/wiki/Hans_Asperger
- CalRobert 5mo agoPerhaps including milder forms of autism under the term was a useful way to reduce funding for the intensive care and therapy required by those with more severe forms (e.g. the nonverbal), since we can now frame these things as “changing who they are” etc. and not, in fact, necessary.
- MSFT_Edging 5mo agoMany children who primarily have intellectual disabilities will be categorized under the "Autism Spectrum" because funding has been applied for "Autism", and not "vague learning disability". If the doctor checks the Autism box, it opens a huge swath of support networks in certain states. I don't blame anyone for lumping their kid in. I think it's more of a massive failure for social funding that hyper-categorizes due to means-testing.