11 ms·
Thank you. May I ask what are you planning for yourself in the future? I've heard that HSCT is not recommended after 40. Are you on any drugs and have they help
by mush_room 4y ago
Thank you. May I ask what are you planning for yourself in the future? I've heard that HSCT is not recommended after 40. Are you on any drugs and have they helped?
- bennyelv 4y agoI’m doing ok on ocrelizumab ( 3rd year just done) and had a good innings with natalizumab before that. In the UK I’m not eligible for HSCT unless I relapse on ocrelizumab. That may change of course. I’m not sure whether HSCT is right for me given that it has some pretty big downsides. My latent symptoms are well controlled at the moment and don’t affect my quality of life too much. If I had to manage a thyroid disorder as a result of HSCT I’m not sure that would be an improvement for me.
- mush_room 4y agoI thought HSCT could halt the disease entirely, but I'm not sure... It's the silent progression of the disease that worries me.
- bennyelv 4y agoMe too. I can see on my MRIs that my brain mass is decreasing, even though there are no new lesions. I'm not quite 40 years old yet and am physically and mentally very active. Does it matter? Time will tell...