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I see where you're coming from, but would the subjects be comfortable with all their data becoming public?
by 0xb100db1ade 7y ago
I see where you're coming from, but would the subjects be comfortable with all their data becoming public?
- ALittleLight 7y agoI think you could, and should anyways, make the data anonymous. Just give every participant a GUID for a participant ID and add a step to purge personally identifiable information. Then you can share records without identity.
- tobylane 7y agoThat didn’t work for the AOL research several years ago. https://arstechnica.com/tech-policy/2009/09/your-secrets-live-online-in-databases-of-ruin/ https://arstechnica.com/tech-policy/2009/09/your-secrets-liv...
- Fomite 7y agoMaking things like medical records actually anonymous, especially in the face of bad actors, is an unsolved problem.
- rossdavidh 7y agoAnonymizing data is, yes, a difficult problem, but in particular aggregated data can, and has been, reliably anonymized. For example, the problem with this dataset would have been visible in aggregated data (e.g. aggregated by nationality).